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  • Beaudoin DE, Longo N, Logan RA, Jones JP, Mitchell JA. Using information prescriptions to refer patients with metabolic conditions to the Genetics Home Reference website. J Med Libr Assoc. 2011 Jan;99(1):70-6. doi: 10.3163/1536-5050.99.1.012.
    Abstract | pub2011004.pdf | PMID:  21243058 | PMCID:  PMC3016649
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  • Califf RM, Zarin DA, Kramer JM, Sherman RE, Aberle LH, Tasneem A. Characteristics of clinical trials registered in ClinicalTrials.gov, 2007-2010. JAMA. 2012 May 2;307(17):1838-47. doi: 10.1001/jama.2012.3424.
    Abstract | PMID:  22550198 | URL:  http://jama.jamanetwork.com/article.aspx?articleid=1150093
    AbstractExternal link
  • Collins H, Calvo SC, Greenberg K, Forman, NL, Morrison SM. Information Needs in the Precision Medicine Era: How Genetics Home Reference Can Help. Interact J Med Res 2016;5(2):e13 DOI: 10.2196/ijmr.5199
    Abstract
    Abstract
  • Deardorff A, Masterton K, Roberts K, Kilicoglu H, Demner-Fushman D. A protocol-driven approach to automatically finding authoritative answers to consumer health questions in online resources. JASIST, 68(7): 1724-1736. doi: 10.1002/asi.23806.
    Abstract
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  • Fomous C, Mitchell JA, McCray A. Genetics Home Reference: Helping Patients Understand the Role of Genetics in Health and Disease Community Genet. 2006;9(4):274-8
    Abstract | pub2006027.pdf
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  • Gopal AD, Desai NR, Tse T, Ross JS. Reporting of noninferiority trials in ClinicalTrials.gov and corresponding publications. JAMA. 2015 Mar 17;313(11):1163-5. doi: 10.1001/jama.2015.1697.
    Abstract | PMID:  25781447
    Abstract
  • Hartung DM, Zarin D, Guise JM, McDonagh M, Paynter R, Helfand M. Reporting discrepancies between the ClinicalTrials.gov results database and peer-reviewed publications. Ann Intern Med. 2014 Apr 1;160(7):477-83. doi: 10.7326/M13-0480.
    Abstract | PMID:  24687070 | PMCID:  PMC4617780
    Abstract
  • Huston M, Williams RJ, Bergeris A, Fun J, Tse T. New style and new content for ClinicalTrials.gov. NLM Tech Bull. 2012 Jul-Aug;(387):e5.
    Abstract | URL:  http://www.nlm.nih.gov/pubs/techbull/ja12/ja12_clinicaltrials.html
    AbstractExternal link
  • Ide NC, Loane RF, Demner-Fushman D. Essie: A Concept-based Search Engine for Structured BiomedicalText J Am Med Inform Assoc. 2007 May-Jun;14(3):253-63. Epub 2007 Feb 28
    Abstract | pub2007019.pdf | PMID:  17329729 | PMCID:  PMC2244877
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  • Logan RA, Tse T. A Multidiscipline Conceptual Framework for Consumer Health Informatics Stud Health Technol Inform. 2007;129(Pt 2):1169-73
    Abstract | pub2007030.pdf | PMID:  17911899
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  • Lu C, Aronson, AR, Shooshan SE, Demner-Fushman D. Spell checker for consumer language (CSpell). J Am Med Inform Assoc. 2019 Jan 21. doi: 10.1093/jamia/ocy171. [Epub ahead of print]
    Abstract | PMID:  30668712
    Abstract
  • McCray AT. Better access to information about clinical trials. Ann Intern Med. 2000 Oct 17;133(8):609-14.
    Abstract | pub2000020.pdf | PMID:  11033590
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  • McCray AT, Ide NC. Design and implementation of a national clinical trials registry. J Am Med Inform Assoc. 2000 May-Jun;7(3):313-23.
    Abstract | pub2000019.pdf | PMID:  10833169 | PMCID:  PMC61435
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  • Mitchell JA, Fomous C, Fun J. Challenges and strategies of the Genetics Home Reference J Med Libr Assoc. 2006 Jul;94(3):336-42
    Abstract | pub2006026.pdf | PMID:  16888669 | PMCID:  PMC1525308
    AbstractDownload
  • Ripple AM, Mork JG, Humphreys BL, Knecht LS. A retrospective cohort study of structured abstracts in MEDLINE, 1992-2006. J Med Libr Assoc. 2011 Apr;99(2):160-3. doi: 10.3163/1536-5050.99.2.009.
    Abstract | PMID:  21464855 | PMCID:  PMC3066587
    Abstract
  • Roberts K, Kilicoglu H, Fiszman M, Demner-Fushman D. Decomposing consumer health questions. BioNLP 2014.
    Abstract | pub7078.pdf
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  • Ross JS, Mocanu M, Lampropulos JF, Tse T, Krumholz HM. Time to publication among completed clinical trials. JAMA Intern Med. 2013 May 13;173(9):825-8. doi: 10.1001/jamainternmed.2013.136.
    Abstract | PMID:  23460252 | PMCID:  PMC3691813
    Abstract
  • Ross JS, Tse T, Zarin DA, Xu H, Zhou L, Krumholz HM. Publication of NIH funded trials registered in ClinicalTrials.gov: cross sectional analysis. BMJ. 2012 Jan 3;344:d7292. doi: 10.1136/bmj.d7292.
    Abstract | bmj.d7292.pdf | PMID:  22214755 | PMCID:  PMC3623605
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  • Siegel ER, Wood FB, Dutcher GA, Ruffin A, Logan RA, Scott J. Assessment of the National Library of Medicine's Health Disparities Plan: A Focus on Native American Outreach J Med Libr Assoc. 2005 Oct;93(4 Suppl):S10-20
    Abstract | pub2005070.pdf | PMID:  16239954 | PMCID:  PMC1255749
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  • Tse T, Williams RJ, Zarin DA. Reporting "basic results" in ClinicalTrials.gov. Chest. 2009 Jul;136(1):295-303. doi: 10.1378/chest.08-3022.
    Abstract | PMID:  19584212 | PMCID:  PMC2821287
    Abstract
  • Tse T, Williams RJ, Zarin DA. Update on Registration of Clinical Trials in ClinicalTrials.gov. Chest. 2009 Jul;136(1):304-5. doi: 10.1378/chest.09-1219.
    Abstract | PMID:  19584213 | PMCID:  PMC2821288
    Abstract
  • Tse T, Zarin DA. Clinical Trial Registration and Results Reporting: ClinicalTrials.gov and FDAAA FDLI Update. 2009 Jan/Feb;1:18-22
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  • Willams RJ, Tse T, Harlan WR, Zarin DA. Registration of observational studies: is it time? CMAJ. 2010 Oct 19;182(15):1638-42. doi: 10.1503/cmaj.092252. Epub 2010 Jul 19.
    Abstract | PMID:  20643833 | PMCID:  PMC2952011
    Abstract
  • Wood FB, Siegel ER, Dutcher GA, Ruffin A, Logan RA. The National Library of Medicine's Native American Outreach Portfolio: A Descriptive Overview J Med Libr Assoc. 2005 Oct;93(4 Suppl):S21-34
    Abstract | pub2005069.pdf | PMID:  16239955 | PMCID:  PMC1255750
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  • Zarin DA, Tse T, Williams RJ, Califf RM, Ide NC. The ClinicalTrials.gov results database--update and key issues. N Engl J Med. 2011 Mar 3;364(9):852-60. doi: 10.1056/NEJMsa1012065.
    Abstract | PMID:  21366476 | PMCID:  PMC3066456
    Abstract

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