CCOI

CENTER FOR CLINICAL OBSERVATIONAL INVESTIGATIONS

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UK Biobank

Image provided courtesy of UK Biobank

Description

The UK Biobank program is a large health and biomedical database that serves multiple retrospective, observational studies and includes over half a million participants between the ages of 40 and 69 from the United Kingdom. UK Biobank contains a combination of health, questionnaire and genetic data that is regularly updated and enriched with new data fields.

Key Information

Dataset Contents
Profile Date	February 2024
Data Date Span	1980-Dec-02 to 2022-Oct-31
Patient Count	502,219
Deceased Count	44,498
Recruitment Status	Active
Dataset Type	Electronic Health Records, Surveys and Questionnaires, Research visit, Wearable Fitness Device, Genomic, Registry
Context	Outpatient, Inpatient
Region	United Kingdom
Age Restrictions	Between age 40 and 69

Dataset Contents

Profile Date

February 2024

Data Date Span

1980-Dec-02 to 2022-Oct-31

Patient Count

502,219

Deceased Count

44,498

Recruitment Status

Active

Dataset Type

Electronic Health Records, Surveys and Questionnaires, Research visit, Wearable Fitness Device, Genomic, Registry

Context

Outpatient, Inpatient

Region

United Kingdom

Age Restrictions

Between age 40 and 69

Access & Availability
Native Data Structure	Custom and OMOP
Hosting	Hosted by data user
Database File Size	35 GB
Availability Restrictions	None
Data Identifiability	HIPAA: Identifiable, Common Rule: De-identified

Access & Availability

Native Data Structure

Custom and OMOP

Hosting

Hosted by data user

Database File Size

35 GB

Availability Restrictions

None

Data Identifiability

HIPAA: Identifiable, Common Rule: De-identified

References and Resources:

Homepage: UK Biobank - UK Biobank
Dataset Ethics Information: Ethics (ukbiobank.ac.uk)
Dataset Support Contact: access@ukbiobank.ac.uk

Dataset Dictionary

Relevant Publications

Papez V, Moinat M, Voss EA, Bazakou S, Van Winzum A, Peviani A, Payralbe S, Kallfelz M, Asselbergs FW, Prieto-Alhambra D, Dobson RJB, Denaxas S. Transforming and evaluating the UK Biobank to the OMOP Common Data Model for COVID-19 research and beyond. J Am Med Inform Assoc. 2022 Dec 13;30(1):103-111. doi: 10.1093/jamia/ocac203. Erratum in: J Am Med Inform Assoc. 2023 Apr 19;30(5):1006. PMID: 36227072; PMCID: PMC9619789.