CCOI

CENTER FOR CLINICAL OBSERVATIONAL INVESTIGATIONS

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PEDSnet

Organization: PEDSnet

Image provided courtesy of PEDSnet: A pediatric learning health system

Description

PEDSnet is a learning health system (LHS) network comprised of multiple children's hospitals with a goal to accelerate the study of child health. Each site contributes electronic health record (EHR) data and collaborates with the PEDSnet Coordinating Center to continually assess and strengthen data infrastructure to support patient-centered outcomes research, development of new methods using real-world data, pragmatic clinical trials, comparative effectiveness research, population surveillance, and health services research.

The data are harmonized to the PCORnet® common data model (CDM) which is based on the OMOP CDM. The data set includes information such as demographics, area-level sociodemographic data that are geocoded data, medical conditions/diagnoses, lab test orders and results, procedures, medications, medical conditions, anthropometric measurements, provider’s specialty, type of visits, and payer information.

Key Information

Dataset Contents
Data Date Span	2009-Jan-01 to 2025-Dec-31
Patient Count	15,662,374
Deceased Count	N/A
Update Status	Active
Dataset Type	Electronic Health Records
Visit Context	Outpatient, Inpatient, Emergency room, Pharmacy, Laboratory
Region	United States
Age Restrictions	< 25

Dataset Contents

Data Date Span

2009-Jan-01 to 2025-Dec-31

Patient Count

15,662,374

Deceased Count

N/A

Update Status

Active

Dataset Type

Electronic Health Records

Visit Context

Outpatient, Inpatient, Emergency room, Pharmacy, Laboratory

Region

United States

Age Restrictions

< 25

Access & Availability
Native Data Structure	OMOP, PCORNET
Hosting	Hosted by data source
Data Download Size	N/A
Availability Restrictions	Administrative review and concept approval by the PEDSnet Research Committee to access the data network; Permission granted by PEDSnet Principal Investigators.
De-identified Data Set	De-identified

Access & Availability

Native Data Structure

OMOP, PCORNET

Hosting

Hosted by data source

Data Download Size

N/A

Availability Restrictions

Administrative review and concept approval by the PEDSnet Research Committee to access the data network; Permission granted by PEDSnet Principal Investigators.

Data Identifiability

De-identified Data Set

De-identified

References and Resources:

Homepage: https://pedsnet.org/database/
Dataset Support Contact*:: pedsnet@chop.edu

*Those interested in collaborating with PEDSnet are requested to complete a Collaboration Request Form, which helps determine collaboration needs and next steps.

Dataset Dictionary

Relevant Publications

A list of publications using PEDSnet can be found here: https://pedsnet.org/research/publications/

Forrest CB, Margolis PA, Bailey LC, Marsolo K, Del Beccaro MA, Finkelstein JA, Milov DE, Vieland VJ, Wolf BA, Yu FB, Kahn MG. PEDSnet: a National Pediatric Learning Health System. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):602-6. doi: 10.1136/amiajnl-2014-002743. Epub 2014 May 12. PMID: 24821737; PMCID: PMC4078288.

Last updated Jul 14, 2026