CCOI

CENTER FOR CLINICAL OBSERVATIONAL INVESTIGATIONS

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PEDSnet

Organization: PEDSnet

Image provided courtesy of PEDSnet: A pediatric learning health system

 

Description

PEDSnet is a learning health system (LHS) network comprised of multiple children's hospitals with a goal to accelerate the study of child health. Each site contributes electronic health record (EHR) data and collaborates with the PEDSnet Coordinating Center to continually assess and strengthen data infrastructure to support patient-centered outcomes research, development of new methods using real-world data, pragmatic clinical trials, comparative effectiveness research, population surveillance, and health services research.

The data are harmonized to the PCORnet® common data model (CDM) which is based on the OMOP CDM. The data set includes information such as demographics, area-level sociodemographic data that are geocoded data, medical conditions/diagnoses, lab test orders and results, procedures, medications, medical conditions, anthropometric measurements, provider’s specialty, type of visits, and payer information.

Key Information

Dataset Contents
Profile Date December 2024
Data Date Span N/A
Data Refresh Date 2024-Sep-11
Patient Count 201,581,911
Deceased Count N/A
Recruitment Status Active
Dataset Type Electronic Health Records
Context Outpatient, Inpatient, Emergency room, Pharmacy, Laboratory
Region United States
Age Restrictions Between age 0 and 25+
Access & Availability
Native Data Structure OMOP, PCORNET
Hosting Hosted by PEDSnet
Database File Size N/A
Availability Restrictions Administrative review and concept approval by the PEDSnet Research Committee to access the data network; Permission granted by PEDSnet Principal Investigators.
Data Identifiability
Limited Data Set HIPAA: Identifiable, Common Rule: De-identified
De-identified Data Set HIPAA: De-identifiable, Common Rule: De-identified

References and Resources:

*Those interested in collaborating with PEDSnet are requested to complete a Collaboration Request Form, which helps determine collaboration needs and next steps.

Dataset Dictionary

Relevant Publications

A list of publications using PEDSnet can be found here: https://pedsnet.org/research/publications/

  • Forrest CB, Margolis PA, Bailey LC, Marsolo K, Del Beccaro MA, Finkelstein JA, Milov DE, Vieland VJ, Wolf BA, Yu FB, Kahn MG. PEDSnet: a National Pediatric Learning Health System. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):602-6. doi: 10.1136/amiajnl-2014-002743. Epub 2014 May 12. PMID: 24821737; PMCID: PMC4078288.

Last updated Dec 31, 2024